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A Trick of the Mind

I’ve been writing this for some time and kinda getting around to posting it, but it kept slipping my mind – for reasons that may become apparent. There’s a very good chance that there are gaps in the account below. Don’t bother asking me about them.

Jan 26th 2014:
I woke up this morning and couldn’t remember what day it was. Or what month or year. I also couldn’t remember yesterday at all. I’ve had bits of it recounted to me by my wife but I still don’t have anything like a memory of any of it.

Everything was apparently fine until early Saturday afternoon in Tesco when I was emptying the shopping onto the conveyor belt and I just stopped while bent over the trolley. After a moment I stood up and a customer at the next till caught me as I was about to fall over. Staff got me a chair and, after five minutes, I asked why I was sitting down, stood up and finished at the till.

I loaded the car, drove home, watched TV and ate a curry, I’m told, but I was a bit of a zombie. No memory. It seems that I forgot I’d quit smoking and I wasn’t sure if my parents were still alive (they are).

Early July 2014:
One week before my holiday in a hostel in Athens (which was NOT as described!), I was emptying stuff from the trolley onto the conveyor belt in Tesco (notice the common theme here?) and the next thing I knew I was sat in the back of an ambulance-car on the way to hospital. Apparently I hadn’t passed out this time but I had been spaced-out and was talking nonsense and muttering something about Davros (Tom Baker era Doctor Who) and I was clearly disconnected.

I spent all afternoon in hospital feeling very vague while they ran various tests including further blood tests. Nothing came up. Disturbingly, I couldn’t remember lots of recent history (like having changed jobs in January).

At six forty-five I was released and I got a cab back to Tesco with my wife (who’d been with me all afternoon), picked up the shopping (which had been stored in a trolley fridge!) and went home.

Late July 2014:
I woke up on a Wednesday with no memory of where I worked or who I worked with, which was decidedly odd. I checked my emails in order to refresh my memory of the company and then I started to walk to the train, during which time I recalled where the office was situated and who my colleagues were.

Sept 18th 2014:
Yesterday I completed a series of cardiology tests (24-hour heart monitor, twice, ECG, other stuff) and nothing appears to be wrong with my heart – which is great news, because who ever dies of a brain attack? Next up, neurological tests in a month.

Dec 2014:
Right, well, I’ve had the results of my heart and brain scans and apparently they were unable to find anything (no surprise there, some might say). The best guess seems to be that I suffered incidents of transient global amnesia, for which there is no known cause or cure but at least it’s got a name.
http://emedicine.medscape.com/article/1160964-overview
http://www.mayoclinic.org/diseases-conditions/transient-global-amnesia/basics/definition/CON-20032746
http://www.mayoclinic.org/diseases-conditions/transient-global-amnesia/basics/symptoms/CON-20032746
Arguably this is better than a stroke or a seizure but it has now happened to me five times in just over a year. It’s quite terrifying while it’s happening. It might have been caused by stress. Anyway, it’s been fine for several months now and there’s nothing else that they can test for so that appears to be that. On the upside, I’ve been thoroughly tested and my heart and brain seem to be fine; on the downside, I’m now all out of excuses…

Dec 21st 2014
Damn, I’ve just woken up like this again. I was fine all day yesterday but when I woke up this morning I couldn’t remember the day or the month or that I’d changed jobs (again). I still have no memory of where I work even as I type this. Frankly, it’s terrifying – but what can I do? They’ve given me scans and run all the tests and found nothing. I’m fine again now, by the way – it only lasted for a couple of hours.

So anyway, having suffered the fourth of my deeply-unsettling episodes, I thought to myself: “You know what? A night without any alcohol probably wouldn’t do me any harm at all.”
Then again, why take the risk? [Shortly after this, I did actually stop drinking on work nights. It’s done nothing for my memory but has done wonders for my body weight. Having also quit smoking several years ago, I now have so few vices that sometimes I wonder if any of this is even worth the bother.]

5th Dec 2015
That’s a bit of a downer: my last “incident” of waking up with no memory was July 31st (undocumented here but insignificant, so far as I recall) so I had rather hoped that it was all over – and then I had it again this morning. Still, that’s over four months, so they’re certainly getting further apart. The worst thing about it now is the crushing sense of disappointment that I suffer as all the details of my life gradually come back to me.

11th January 2016
And again today – which is a lot closer together again. The weird thing is that, as the episode passes, over the next few days I’ll get memories popping into my head that I haven’t recalled for years, and they’ll be really vivid – almost as though I’ve been revitalised as a direct consequence of the incident. On the other hand, I do seem to struggle during this period to form any new memories or learn new processes, and I also forget the names of colleagues. It’s as if my memory is fragmented. There are a few areas of my memory which I have no recollection of but which I can be prompted into: someone will begin to relate an incident to me and, while I cannot remember the event itself, I can recall the anecdote, as though it had been related to me rather than being my own. Watching TV, I will forget who characters are between scenes and often have no recollection of what the plot is. I have largely given up trying to read books for the same reason. Occasionally I find myself getting confused over simple things and I have a quick temper as a consequence of this. I forget big things, too: the other night my wife was talking to me about the holiday we had in Yorkshire and I couldn’t remember ever going there. I checked for photos on my PC and there were dozens. We went in 2013 – less than three years ago. I recognise the images but they don’t feel like my memories.

Obviously I have mentioned this to a few colleagues, in case an episode occurs while I am at work but, perhaps surprisingly, the issue has never arisen in the office. Indeed, the incidents all seem to have happened in situations which demand little or no attention, when I have effectively been mentally parked – although both supermarket episodes occurred after I had spent a couple of hours exercising in the gym.

20th March Ultrasounds appointment.

23rd May Neurology appointment.

4th June 2016
I was given a second MRI to see if there were any differences from my December 2014 scan. I’ll get the results when I get back from holiday.

13th June 2016
I woke with no memory while on holiday in Madeira. “This isn’t our bedroom! Where are we? Where am I?” Once again, somewhat unsettling since I had no idea where I was. Luckily the missus was able to set me straight and I was back to what passes for normal quite quickly.

18th June 2016
Results:
“The gentleman’s repeat MR brain scan showed no significant abnormalities.”
No significant abnormalities? Well, ain’t that rubbing salt in the wound! Presumably this might relate to the damage I suffered in my teens (when I was run over and suffered a fractured skull, resulting in a twenty-five day coma and then had to learn to speak again. Yes, I know: what a mistake that was!).

18th July 2016
Blood taken to test for neurosyphilis (who knew?). Some of the symptoms are: abnormal gait, sudden personality changes, changes in mental stability, dementia, depression, irritability, memory problems, mood disturbances, poor concentration. Yeah, I know, I know…

21st July 2016
Woke up in the night and my wife wasn’t with me (she was away, visiting family) so I searched the house for her. Twice. When I woke properly, this was followed by a significant memory episode and a day in which I was, once again, virtually unable to form any new memories. For a couple of days afterwards, I notice – not for the first time – I have a significantly heightened sense of smell.

12th September 2016
Another episode. “Fortunately, transient global amnesia is rare, seemingly harmless and unlikely to happen again. Episodes are usually short-lived, and afterward your memory is fine.” Pah.

You might think the worst thing about TGA is feeling utterly displaced in the world, with no sense of the present or my place in it, but actually it’s the crushing disappointment as the reality of who I am and where I am are revealed to me afresh.

29th January 2017 Woke with no memory. Eleventh episode in three years. And my memory has holes in it but when I ask people questions they just ridicule me so I sit stewing and I withdraw from communication and start to despise everyone around me. Maybe trying to look on the funny side should help but all I’m feeling is isolated.
Curiously, just recently I’ve been getting long-ago memories popping-up fresh in my mind again, so now it seems that they’re a prelude (rather than a postlude) to the event.

1st April 2017
Well, it seems that my brain at least has a sense of humour, deciding to screw with me on All Fools’ Day. I woke up feeling displaced from time, unaware of the year or my age or my job (but at least it was on the weekend this time) or my place in the world. Once again, I struggled to form new memories during the day – though I went to see a play in the evening which I can recollect just fine). Because I am, at least, always able to recognise these incidents now, I am also able to explain to people that my behaviour may seem a little out of sorts because of the phenomenon that I am experiencing. Alas, by the next day (which is when I am writing this), I have no recollection of who these people were. I suspect that it may have been an inappropriate level of over-sharing (although that’s actually quite normal for me anyway – mental conditions really are wasted on me, I swear).
I noticed, once again, a strange chemical smell seemed to pervade everything – and I haven’t had any chemicals up my nose for years now*. [* footnote to parental units: this references the industrial cleaning job I had at Waldens in the summer of ‘86] Additionally, I seem to be very emotionally laid bare; certainly I don’t recall ever crying while watching Superman before – not even back in 1978.

30th April 2017
And today I woke with it again. I’ve been ill for a few days, which didn’t help, but I awoke with no idea of where I work or who with. Or the date, or the year. The thing about it is, it actually seems quite trivial in retrospect – I imagine that reading it is getting quite tedious – but I can envisage how this is going to leave me neglected in a home at some point, patching together seemingly random, disconnected days while waiting for death. On the other hand, this is the thirteenth episode but I haven’t bothered reporting them since last summer because each one seems less severe. Once again I note that I am emotionally fragile – especially as, looking back, I recall how everything once seemed possible and now I can see how that’s worked out.
There used to be hope. That’s what I miss about being young: the belief that there was another world out there to be discovered. I suppose that’s how religion works too: allowing people to believe in possibilities. I miss the illusions. Without that pretence, there’s nothing.

1st July 2017
I’ve decided to post this now because I haven’t had an episode in absolutely ages. Except I have, of course: it’s just that I didn’t recall that until I re-read the whole blog just now. Whatever, I’m done with sitting on it.

Theresa May’s Claim to British Values

Theresa May got a lot of praise for her speech in response to Wednesday’s terror attack, and rightly so. In that speech, she stated that “democracy – and the values it entails – will always prevail. Those values – free speech, liberty, human rights and the rule of law – are embodied here in this place, but they are shared by free people around the world.” Quite right. Never were truer words spoken.

However…

Perhaps I’m being over-simplistic here but it strikes me that a lot of those values have been under sustained attack by those specifically entrusted with their protection: our elected government. This has been attempted under the guise of Ms May’s own notorious Snoopers’ Charter, which can most certainly be seen as a threat to free speech; in her party’s continued insistence that Britain withdraws from the European Convention on Human Rights; and, most recently, in the shameful challenge that Brexiteers mounted against the Supreme Court’s ruling that Parliament was entitled to a vote on the implementation of Article 50 – a ruling which protected the proper parliamentary process and a challenge which therefore posed a threat both to democracy and to the rule of law.

Let us hope that, in response to this week’s attack, the Conservative government has now determined to uphold these cherished values upon which our British sense of honour and justice is founded.

Free School Farce

So it seems that, in the face of continuing austerity and deepening cuts to public spending, Philip Hammond has managed to find hundreds of millions of pounds to splurge on Theresa May’s pet project: free schools. One of the supposed freedoms which these schools enjoy is that they don’t have to follow the national curriculum, although quite what purpose that serves is anybody’s guess. I cannot imagine how it could be in the best interests of the pupils – unless the national curriculum is not fit for purpose, in which case I would suggest that it is in urgent need of review.

These free schools can be set up and run by independent (which is to say, private) schools or by people who really know what they’re doing, like parents or faith groups – because, in the Brexit age, everybody’s had enough of experts.

What free schools truly represent is the channelling of public money into the Tories’ cherished private sector, and their propagation contributes to the further undermining (and under-funding) of state education. Free schools are purportedly not-for-profit but that merely means that they are run as charities, which is the same outrageous tax-avoidance scam that schools in the private sector have been pulling for years. Tax free schools. Indeed, since free schools are also able to set their own pay and conditions, there can be little doubt that this programme is about little more than the creeping privatisation of state education by the back door.

As ever, the Conservative vision of a small state serves only to lead to a widening of the divisions in society – and yet somehow it always ends up being subsidised by the taxes paid by ordinary working people.

The Great British…

Now that the BBC is set to lose The Great British Bake Off, I thought the time might be ripe to propose a slight variation to the format. As it happens, I have an idea for a programme featuring the competitive making of traditional Jamaican chicken and pork dishes, ideally to be hosted by that Boris Johnson fellow.

Unfortunately, I’m rather stuck for a title. I wonder if anyone might be able to suggest something apt…

Burka Burks

According to a YouGov Survey, 57% of British people want a ban on burkas in public places. Here’s the thing: we live in a free country – something which we rather value – but that means that it has to be a free country for everybody: you can’t just have freedom for people who you agree with – endeavouring to follow that path means you end up having laws not only about what people can wear but on what religious beliefs they can hold, what political direction they may follow, what opinions they are allowed to express and even what they are permitted to read (in fact, I believe Theresa May already has that last one very nearly covered in her upcoming Snoopers’ Charter…). Pretty soon you’ll find yourself living in the Democratic People’s Republic of Korea.

No, if we truly want to preserve what we perceive as being the British way of life then what we actually need to do is to defend people’s freedom of choice and of expression, and that means ensuring that nobody has anybody else’s will imposed upon them – that all of us are equally free from oppression and subjugation. The only way to achieve that, of course, is through improving education and by defending liberty. It may not be the fastest path to change but it is the only way of preserving freedom and democracy.

Meanwhile, in France…

In 1940, with fascist forces marching steadily across Europe, Winston Churchill famously gave his “We shall fight on the beaches…” speech (oft misquoted with a “them” erroneously inserted). It’s good to see that the French are today able to summon the same grit when it comes to facing down women wearing modest swimwear, although I can’t help thinking that they may have rather missed the point, which I believe was something about defending liberty from an uncompromising and authoritarian state. Liberté, égalité, fraternité, huh?

God’s Final Message to Mankind

I am well aware that Mohammed was technically God’s last prophet, but he appeared to me in a vision the other day and asked me to pass on a few minor details to clear up some confusion:

God doesn’t care about hunger, poverty, deprivation or war; all he’s concerned about is how we wear our hair, what meat we eat, how often we shave and that we mutilate the genitals of our children. Oh, and he said to please make sure that we keep killing each other in his name.

Yours faithfully,

The Prophet Fles

Bitter Tweet Symphony – an attempt to explain the phenomenon of the “Twitter-Storm”

Twitter is not a thing, a place or even a collective (although it is often described by the media in those terms). It is perhaps easier to think of it as a virtual soapbox: it is a far-reaching communication tool which can spread opinions and information around the world. One finds one’s audience (or, perhaps more to the point, they find you) and one chooses one’s feeds of information and opinions, much as in real life. The attraction is that people who might never encounter each other in the real world can find kindred spirits and explore ideas together.

Many of the occupants of the Twitterverse are affable and thoughtful souls; others may not even be sane. Think of them as friends and family. Now, naturally, any debate held in an open forum may attract its fair share of halfwits, bigots, racists, conspiracy theorists and even Tories, but they also have their place and are entitled to their voices. As I said, think of them as friends and family. [There are also lunatics, of course, but they can be blocked, muted or simply ignored. Think of that as locking them in the loft or cellar…]

Naturally, if one is to hold and express an opinion in this public forum – on politics, society or any other topic – then one really ought to be prepared to explain the rationale behind that position and even be ready to defend it to a potentially hostile audience. This is simple debating and it is the foundation of intellectual discourse and, indeed, democracy.

The problem with social media – well, one of the problems – is that it can occasionally whip good people into a frenzy over the merest perceived sleight. Online life seems to somehow encourage individuals to react with emotion over intelligence at times (and thus often without making the effort to understand the deeper story behind an event, let alone check sources…) but that is entirely a human failing and one which has very often been quite deliberately fostered – our tabloid media has been especially guilty in this regard.

The web is the new frontier, an unexplored environment of pure (and not-so-pure) mind, and social media is a territory upon which many people have set out on a voyage of self-discovery, often seeking to fulfil their need for “validation”. In the same way that the new frontier of America, back in the days of the Wild West, could not be held to blame for the rise of outlaws and gunslingers, nor can social media be held responsible for an occasional tide of outrage among those who populate it. A “Twitter-storm” is but a symptom, for social media merely hosts opinions; the puerile nonsense, alas, stems from humanity itself.

Filibustering Farce

The NHS Reinstatement Bill was deliberately blocked on Friday by Tory MPs who spoke on another topic at great length in order to use up parliamentary time – and this is not the first occasion that we have seen this tactic employed. Filibustering may be considered by some of our political representatives to simply be a normal part of parliamentary procedure but the fact is that it makes a mockery of democracy and is an insult to each and every member of the electorate. The House of Commons is not some sixth form debating society; reducing the discussion of the future of our nation to the level of a college sport trivialises the issues which members of the public live and experience every day.

The future of our NHS and of other public services is important to British citizens; these institutions are held dear and if ministers are not prepared to do their duty by taking the trouble to consider the interests of the people whom they are elected to represent then they should be expelled from the House, for they have no place in a modern democracy.

Some politicians seem to think that the Commons is a venue for party political games to be played out but that isn’t the perspective of anyone outside of their tiny clique. We keep being told that the public are disengaged, disenchanted and disenfranchised from the political process but that actually couldn’t be further from the truth – most people care deeply about politics but their over-riding feelings on politicians tend towards cold anger and despair at being treated with such naked contempt by our supposed representatives.

It is evident that many of our political class see themselves as being set apart from the masses but they should take care; such shameful behaviour will not be tolerated by the people of the UK.

Sign the petition to stop this behaviour.

Moderate Political Positions

Perhaps I’m being obtuse but I really don’t understand the basis for the constant stream of allegations I see in the media that Jeremy Corbyn is “extreme left-wing”; he’s a socialist – that’s kinda the point, surely – so he wants libraries and hospitals and social housing and a more equal society, but I’m not seeing anything extreme in what he’s talking about. Nonetheless, a great many political pundits are discounting him, insisting in print and online that the public will only elect “moderates” – and yet the only recently re-elected Tories (with a “majority” of 37% – not much of a mandate there) are selling off all our national assets and presiding over the greatest increase in levels of inequality seen in this country since Dickensian times. Perhaps it’s just me but I fail to see how that behaviour might be considered to be even remotely moderate.

Forcing the sick and disabled back into work only killed a moderate number of them, I suppose – despite all David Cameron’s claims about the faith of this country, the only concession to Christianity that his party has made was Iain Duncan Smith demanding that the lame should throw down their sticks and walk – but forcing people into deeper and deeper debt because of dogma-driven cuts also strikes me as being rather extreme. Can somebody – anybody! – please explain to me precisely what it is about the Labour party leader’s political position that is more offensive or outrageous than stripping our country of its services and infrastructure, selling its assets off to overseas (and often tax-exempt) concerns, outsourcing public services to known tax-avoiders and driving the poor into utter destitution?

Meanwhile, recent actions taken by Cameron’s government include cutting the armed forces, cutting the police force and now cutting the fire brigade – one imagines in order to get them all to sizes where they can be more easily managed by either G4S or Capita. These smaller units will presumably allow only moderate conflicts, moderate crime waves and moderate infernos to follow the moderate flooding which has engulfed Britain of late, causing hundreds of millions of pounds worth of quite immoderate damage.

Whatever criticisms one might wish to make of him, the thing that does appear to set Corbyn apart is that he only takes positions that he genuinely believes in: every statement that he issues is consistent with his behaviour ever since he first came into politics; unlike, for example, David Cameron, who persistently takes positions which are utterly at odds with those that he stated just prior to the two elections in which he has stood: no cuts to front-line services, no top-down NHS reorganisations, no plans to raise VAT, no means-testing of child benefit, no plans to scrap Education Maintenance Allowances, no plans to scrap Sure Start, no cuts to child benefit, no cuts to welfare… Please, tell me again which party it is that is in disarray and has now become unelectable.

London Weighting? Nope, London (and the rest of the UK) left waiting

Many people of late have expressed the opinion that homes in London ought to be made affordable for those in essential occupations but not so much for other ‘wannabe Londoners’ because “London is a great place to live but… if you can’t afford it find an alternative.” Well, here’s the thing: London is a great place in large part because of all the life, the vibrancy and the amenities that it has, but if you want to be able to enjoy the bars, sandwich shops, malls, cafés, gyms, cinemas and offices then they will all need to be staffed and cleaned and those are jobs which pay neither megabucks nor, very often, a commuting salary. Homes need to be made available for all and affordable to all.

And besides, who truly wants to live in a fiscally-segregated society anyway? People is people – being in a different salary bracket doesn’t make any of us any better than or even any different to one another; just more fortunate, perhaps. Inequality is the enemy of social cohesion and it is certainly not a state to be encouraged or pursued. The alternative to an integrated society is a disintegrated society, with all of the fragmentation and division which that term implies. We should be aiming to become a more whole nation, working together to make not just London but Britain a place we can all be proud to be a part of and proud to call our home, and that is why greater provision of so-called social housing is something which we all ought to be demanding.